The Web of Prayer

4-May 2022

Charlie, Sara, Nathan, Izzy, DJ, Nazear, Finley, 5 year old boy and Dylan


Charlie Capalbo 4/24/2022


His story is inspiring. His smile and strength will never be forgotten. Charlie you have touched so many lives along your journey. You have been surrounded by amazing support with family and friends and we will be sure to keep your legacy going strong. Rest In Peace. #CapalboStrong #fuckcancer

No words can adequately describe the heartache that I feel this morning for this Beautiful family. This young man was an inspiration to so many & had smile who lit up a room. He gave such a valiant fight and with such dignity, made a huge impact on so many lives . No one should have to endure this once let alone many times. Today Let us pray, don't take life for granted. Make a difference, love your loved ones, reach out to those who are dealing with this gut wrenching pain everyday. Let your loved one know you care even when it's hard or you don't know what to do or say. It means more the you ever know coming from a family that understands. Today light a candle or put out your hockey sticks in his memory. For a hero that will never be forgotten who put up such a valiant fight. We all will continue to make a difference to change pediatric cancer, no one should have to go through this, we need to find a cure! Sending a huge embrace, love, light to this family. Rest In internal peace Charlie

This loss hit me hard as he & Dylan has such a similar journey & fought so so hard. Please pray for this family.‬‬


Sara

Sara


Sara loves school but due to her energy levels she is not very active in school, She gets up several times at night and does not get enough rest, Sara is not responding as we would like to the medical treatment because her digestion is very slow and the doctor believes that COVID affected her condition too. Please continue to pray for her, so that she no longer has TPN and can eat through a feeding tube. We live day by day but for God everything is possible and prayer has a lot of power. Thank you.

Congratulations to Sara!! Great Job continue to reach for the stars sweetheart .


Nathan

Nathan - brain cancer


May is Brain Tumor Awareness month. Nathan has been battling brain cancer since 2009 and it spread to his spinal cord in 2011. His tumors have progressed 7 times since the initial diagnosis. He has been on 9 different chemotherapy or targeted treatments with thousands of shots and pills that he has taken. While cancer may scar you physically, mentally and emotionally, there is beauty in each scar. His story is being written with each scan, progression, stability, and treatment. There is hope in spite of each heartache, laughter in every good report and prayer with each impending scan. A cancer diagnosis changes you. You can push through each day waiting for the day to pass or you can find joy in the moments and be thankful for each day you have been given. The month of May is a time to reflect on the journey, mourn with the families whose battles have ended, pray for those still battling, and rejoice with those who are in remission. #prayingforacure #gogreyinmay #braintumorawareness


Izzy

Izzy - relapse Leukemia


Great News Izzy is in Remission: Izzy's counts are all looking good. She has a surgery consult scheduled for Tuesday to get her port removal on the books! As long as we can get surgery scheduled in the next 6 weeks, today was her last port access. Izzy is smart girl, and made sure to negotiate that today's needle to the chest earned her some Boba tea...and a couple of macaroons from her favorite Chewy Boba Company USF. #izzystrong


From DJ's Mom: I do hope all is well with you. Dj is coming along each day. I thank everyone who prayed for him. We don't have a go home date yet. I was told yesterday he won't be able to eat for a long time or drink. The distance between his intestine and his stomach is short so he his having dumping syndrome. He will be fed through is veins but does have a long term effects. They are trying to figure out his feeding will go since he keeps dumping fast as soon as anything goes in. Anyway please keep us in your prayers because I feel so tired physically and emotionally and once again thank you and grace for your love and support and for the works you guys do daily. Sincerely Audrey and David.

Nazear is doing well, will be going on his wish trip in August to St. Thomas.

As you know Finley lost her battle last May. Our thoughts and prayers are with this special family! Recently mom gave birth to Boy Callum Finn — Congratulations & thank you for all your support to CWOP in memory of Finley.

New Diagnosis: 5 year old Boy — AML Leukemia, currently at Yale. Please pray for him and his family.

As you know May is a tough month for many of us who have lost our children. To all those children and all that are still fighting, I ask if you all can help in any way it would be greatly appreciated!! Please share... 8 years ago on May 21st after a 7 year battle with Leukemia we lost our beautiful hero who showed us all no matter what you are going through love like it was your last day! He smiled everyday and touched so many lives, made a difference in such a short life. I just wish he didn't have to suffer so much and I could have traded places with him. Dylan said, “mommy, don't be mad I have cancer I lived a good Life.” Words of a Hero and I was blessed to be his mommy. I stand today to make a difference in the lives of children with cancer . I need your help to make this happen. Thank you all in advance...If you can make a donation, sponsor a sign or donate a raffle prize it would be greatly appreciated. Spread the word, share our page. May 21st was the day he passed, it would be greatly appreciated. This will run for until our Dylan's Fortunato Golf outing which is on June 10th, 2022.



3-Mar 2022

Nathan, Sara, Mason and Izzy


Nathan - long battle with brain tumor


So Nathan broke his arm this weekend at a youth retreat. Since he didn't get back until later yesterday evening, we went to the orthopedic doctor this morning. His elbow is broken in two places and it's crisscrossing. They think he is probably going to need to have surgery, but they have contacted Duke to see if a specialist there can look at it and what they recommend. He is one tough kid.

Update:
Nathan just went back for surgery. Dr. Kiernan gave us a few different scenarios of what he may do depending on what they see when they try and put the bones back together. He said there also is the possibility of another surgery being needed after this one. Surgery should be about 1 1/2 hours or so and then we will know more. Thank you all for your continued prayers. Nathan has a great attitude and we have phenomenal doctors. God's got this! "Have I not commanded you? Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go." Joshua‬ ‭1:9‬ ‭ESV‬‬


Sara

Sara


From Sara's mom: Thank you very much for all your prayers. Sara is a very happy girl and loves school but due to her energy levels she is not very active in school, She gets up several times at night and does not get enough rest, Sara is not responding as we would like to the medical treatment because her digestion is very slow and the doctor believes that Covid affected her condition too. Please continue to pray for her, so that she no longer has TPN and can eat through a feeding tube. We live day by day but for God everything is possible and prayer has a lot of power. Thank you.


Mason

Mason


He didn't make counts 570 instead of 750. He was supposed to have his 4th round of methotrexate this week and be done with round 4 of chemo but we're on hold until his counts come up. A month before he starts Blina which is a new drug.

Please pray that Mason's counts come up and that he is able to be done with round 4 and that he can start his new chemo. Let's also pray that he continues to stay in remission, with no side effects.


Nathan

Izzy - relapse Leukemia


Great News for Izzy. She is now officially done with treatment!! Please continue to pray for Izzy that she stays in remission.

2 years ago, our whole world turned upside down for a second time. We are forever grateful for all the amazing people in our "village" who have helped us through. Now this amazing girl only has 3 days of chemo left!!!
#izzystrong
#3moredays
#childhoodcancer
#leukemiaawareness


Please pray for Mallory DePaolo, that surgery goes well and she has a quick recovery.

Please let us pray for Trista's Dad/ Dre's Grandfather who took a bad fall and had to have 9 stitches on his head, and that the bleeding he has resolves it self.

Pray for our country, especially for Ukraine.



16-Jan 2022

Caylee, Marvell, Sara, Rowe, Nathan, Izzy and Grady


Caylee

Caylee


Please pray for Caylee who is currently at Yale and has Covid and was intubated. Today, mom says that she is doing a little better and they are lowering the settings on the machine. Please continue to pray she fully heals from Covid and can be removed from the machine.


Marvell - New Diagnosis


Please pray for Marvell...
I began to notice a growth in my neck near the final quarter of the year. At first I didn't take it seriously because I believed it would go away, but after two months, the growth got worse and I started experiencing extreme amounts of pain. I was no longer able to sleep on my back or on my stomach at night or else I'd wake up to extreme pain in those areas in the morning and this finally prompted me to go to my primary doctor. My doctor ran X-rays and blood test but, couldn't find a conclusive answer so he referred me to doctors up at Yale New Haven Hospital. Here they gave me CT Scans, Ultrasounds, and a Biopsy to confirm their suspicions after their evaluations. A week after the biopsy they called us back a gave us the bad news that I'd been diagnosed with Stage 2 Leukemia (Large Diffused B Cell Lymphoma). I was very emotional and the same day I was hospitalized for chemotherapy and I'm currently receiving treatment.


Sara

Sara


The family all had Covid and all are doing much better. Sara is back at school and doing as well as can be expected.


Rowe

Thank you from Rowe's family


Good morning Grace,
I pray all is well with you and I hope you got good rest. Just wanted to give you the praise report. Rowe is home from hospital for special care. We didn't get any nursing but my family and I are making it work. Please let Charlotte's Prayer, the young man that connected us, that we appreciate everything, every prayer, gift card, pjs, toys etc. We thank God for you! God bless!


Nathan

Nathan Norman - long battle with Brain tumor


Praise God, Nathan's tumors look very stable. They have not increased in size or enhancement. He has been on the chemo now for 6 months. He has had a few side effects from the treatment, therefore, since things have been stable the last two scans, we have all decided for him to take a break from the chemotherapy to allow his body to heal. He will continue to have scans every 3 months and if there are any concerns, symptoms, growth or enhancement, then he will start back on this treatment. Thank you all for your continued prayers for Nathan and our family.
Psalm 118:17 "I will not die but live, and will proclaim what the LORD has done."


Izzy

Izzy


last chemo is scheduled for February 28th. Let's pray that once and for all she will be cured of the leukemia. This was her second battle with it.


Grady - 12 years old - Brain/spinal tumor


Please continue to pray for Grady, he has been in Boston for the last 3 months and now has to go back to get chemo in Boston as well. His mom is unable to be with him because she has been very sick with pneumonia it has been a really tough time for all of them. Things haven't been going well. Let's pray that the chemo and radiation Grady receives helps get him in remission.



30-Nov 2021

Grady, Nathan, Sara, Mason, Lixy, Kaylena, Izzy, Ashlyn, Finley, Dylan and Dre

Grady

Nathan

Sara

Mason

Lixy - Sickle Cell


Lixy is having lots of sever side effects from her transplant. Please let's pray that her side effects get resolved & she starts to feel better.

Kaylena


One year ago, sweet Kaylena gained her Angel wings. We have missed seeing her adorable face and precious smiles. In our hearts always.

Izzy


This sweet girl asked me to stop and get donuts for everyone at clinic today. (And then told me I couldn't sit by her because the donuts need their own seat.) Today she gets a CBC and CMP. She'll come home with her port accessed tonight, and then come back tomorrow morning for her second to last spinal tap with intrathecal chemo. Let’s pray that Izzys spinal tap is clear and she has little no side effects. #izzystrong

Ashlyn


Please pray for Ashlyn — We are back at Yale. She was here last week with a virus and was discharged and is back now with another fever and Covid :( we just had her sisters tested and they have it to and so do I... please pray tha Ashlyn will recover from Covid and they are able to keep her stable and she will be able to be home for the holidays.

Kaylena

Dylan and Dre Baker


26-Oct 2021

Grady, Mason, Nathan, Finley's mom, Kaylena's mom, and Sara

Grady

Mason - 2 years old - All Leukemia/High risk


Mason was off chemo for a few weeks so his body and counts recover. He was able to receive chemo this week and is stable. Please pray that he continues to do well and has little to no side effects.

Finley and Kaylena

Nathan

Sara


24-Sep 2021

Sara, Mason, Nathan and Izzy

Sara

Mason

Nathan

Izzy


18-June 2021

Rowe, Nathan, McGuire Family, Lyss, Sara, Aniylah, Caylee, Irene and Ethan

Rowe

Nathan

McGuire Family


Please continue to pray the McGuire family as they continue to grieve their daughter Finley.

Lyss

Sara

Aniylah

Caylee

Irene

Ethan - Kidney surgery


Please continue to Pray for Ethan. He was able to come home from the hospital, and his infection has cleared up. Ethan will be having surgery soon to remove a kidney, that is not working properly. He was also informed that he will not be allowed to play any contact sports(Ethan played lacrosse, and comes from a big lacrosse family).

Please pray that the surgery is a huge success. Pray that Ethan will recover better than expected, and that his remaining kidney can provide everything his body needs to stay healthy. Also pray he finds new interests and /or non-contact sports to play, that he will love. Please also keep the family in your prayers.


17-May 2021

Finley, Zoey, Mason, Sara, Irene, Caylee, Halleigh, and Ryan

Finley

Zoey

MasonSara

 

Irene

Caylee

Halleigh- age 4 (from Texas)


All leukemia- please pray for this little girl that she has complete healing and stays in remission.

Ryan


Overall is doing so much better &He will be having a pet scan on June 15th! Let's pray they he continues to stay Healthy & in remission.


30-Mar 2021

Sara, Finley, Zoey, Charlie, Mason, Ryan, Brandon, Irene, Daniella's mom and Jordan

Sara

Finley

Zoey

Charlie Capalbo - 21 years old - Leukemia relapse


3rd battle with Cancer. Has already had a bone marrow transplant by his brother that was a match. Please continue to pray that the treatment works & they are able to cure Charlie once & for all. Pray for the family's strength during this difficult time. Charlie is currently at Boston Children's Hospital getting treatment.

Mason - 5 years old


Please continue to pray for Mason! He is doing as ok & Happy to be finally at home. He has been going to lots of appointments. The latest orthopedic appoint showed that Mason femurs are out of socket & causing him pain. Please pray that the doctors can help help keep pain under control & resolve this issue when he is a little stronger. He also had a heart appointment as well It went Okay..they sent home on 48 hour Holter monitor so that an electrophysiologist can see how his etopic issue is. His right atrium is still enlarged and aortic aneurysm has only gotten slightly bigger but not concerning right now. Let's pray that Masons heart stays stable. Please pray for the family's strength to continue care & that Mason is stable while at home with his family.

Ryan

Please pray for the 3 year old in East-haven


who passed away this weekend from a long battle with brain cancer.

Brandon - 10 years old - All leukemia


Getting treatment at Yale overall doing ok. We pray that he continues to do well with no side effects from treatment & stays in remission. Pray for his family for continued strength through this journey.

Irene


Please pray for Irene who is dealing with Covid on top all the other setbacks from long term cancer treatment.

Daniella's mom


She is dealing with lots of serious setback from her blood disorder and had an allergic reaction last week that was very scary. Daniella & her parents provide beautiful cakes to terminally ill children. Please pray that they can provide care to her mom.

Jordan


Please pray for my Jordan who may need surgery on his elbow wiring in MRI results &for my husband Anthony that his heart appoint coming up will be good news and his aneurism is stable.

Please continue to pray for all the families that are not listed today. We thank you for all your prayers & continued support.


5-Feb 2021

Caylee & her baby brother and Finley

Caylee

Finley


4-Feb 2021

Zoey, Charlie, Sara, Mason, Jasmine, Adalia, Naz, Ryan, Brandon, Emmanuel family, Kaylena's family and Izzy

Zoey

Charlie

Sara

Mason

Jasmine

Adalia

Naz - 19 years old


I had mentioned that Naz was having some issues with his heart & would have to have surgery...Well I have fantastic news with further testing and all prayers Mom has said that the doctors have said that he is stable & they will keep an win his heart but as of now he doesn’t need surgery.

Ryan - 19 years old - relapse


Ryan is home from Yale & doing much better after dealing with an infection. Please pray that Ryan will continue to stay as healthy as he can & continue with little to no side effects. Pray that he continues to be cancer free!

Brandon - 10 years old - B cell leukemia


Currently in treatment - please pray for Brandon & his family while going through his intense treatment.

Logan Emmanuel's family


Please continue to pray for Logan Emmanuel's family as they had to lay there baby to rest last month — he was only 3 months old.

Kaylena's family


Also please continue to keep Kaylena's mom & grandparents in your prayers as they are dealing with so much heartache from the loss of Kalena... pray for strength, healing, for this family’s heartbreaking loss.

Izzy


1-Dec 2020

Kaylena, Ryan, Mason, Izzy and Logan

Kaylena

Ryan - 17 years old - Non-Hodgekins lymphoma


Ryan was diagnosed in July, Mom says he is doing ok with treatment. She curtly stopped working to stay home with Ryan to help with his treatment. Please let us pray that he will be cured from this cancer and he will have little to no side effects. If you would like to "Adopt" Ryan for the holidays please contact myself or Chris.


Mason

Izzy

Logan - 3 months old - NICU Yale


Please also pray for Logan. He is 3 months old and has spent his entire life in Yale's NICU. Born Aug. 2 early. Had problems at birth. Got sepsis, and had to remove 75% of small intestine. Praying that his colon is still attached. Please let us pray for baby Logan that he won't need a colonoscopy bag and sepsis goes away and that he will be able to go home with his family soon.


6-Nov 2020

Kaylena and Mason

Kaylena

Mason

29-Oct 2020

Jayden, Sara, Logan, Kaylena, and Mason

Jayden

Sara

Logan

Kaylena

Mason

9-Sep 2020

Kaylena, Justine, Mason, Neymar, Sara and Izzy

Kaylena

Justine

Mason

Neymar

Sara

Izzy

27-May 2020

Irene, Sara, Mason, Kaylena, Dylan and Charlotte

Irene

Sara

Mason

Kaylena

Dylan

Charlotte DePaolo


Please continue to pray for Charlotte & the DePaolo family. Please pray that the doctors can figure out the best way to treat her anxiety, and stop the panic attacks.

24-Mar 2020

Sara, Izzy, Julia, Aniylah, Derek, Irene, Mason, Caylee, Alexa, Amanda, Shania and Carness

Sara


Happy 4th Birthday to Sara. Mom says Sara is doing ok. Sara was recently hospitalized due to her stomach condition. Let's pray that she continues to do as well as she can & stay healthy. Pray that the doctors can continue keep her stable.


Izzy - leukemia relapse


We met this Izzy with Dylan at Camp Sunshine. After being in remission after 6 years Izzy has relapsed & now has to start chemo all over again. She has been going through so much & feeling really sick. So far has been in the hospital for several weeks enduring lots of setbacks but the good news is her ANC is 500. Hopefully next week she will be able to go home. Let's pray she continues to have an elevated ANC & when they do the bone marrow aspirate that she is in remission. Pray she is able to stay healthy with minimal to no side effects.

From mom: We know for sure now that Izzy is once again fighting leukemia. We will have an exact diagnosis later today as to which type, but her oncologist suspects it's the same as last time. (A.L.L.) Her counts are too low for surgery so she won't get a port right away. They are going to do a PIC line temporarily and plan to place her port in a few weeks. Tomorrow she will have her marrow aspirate, and a spinal tap and she receives her first dose of chemo. I'm sad, angry, and so many other emotions, but Izzy isn't. She's just brave. She knows she'll beat this again. All children's is doing an amazing job keeping her comfortable and happy, and reassured us that she has really good odds of beating this cancer again.


Julia - 4 years old rare brain tumor


Passed away after a long hard battle.
Julia Caoilainn Adams
December 2, 2016 - March 15, 2020

Please let's pray for the family for peace, understanding, much needed strength....especially her little brother. So saddened by this. May she rest In peace.


Aniylah and Derek


Both are doing well, overall no issues. Recovered well from the flu. Pray they continue to stay healthy.


Irene - bone cancer


Please continue to pray that she does well.
Forgot to update y'all on the lil nodule/mass/lump in my pelvis... They're having me do 6 weeks of PT to see if it helps alleviate discomfort, then we can discuss biopsy and resection. A biopsy and surgery in that area would be a big deal, and not easy to recover from. I don't think I can handle that right now, with everything my body has been through. So I'm willing to try PT. Send good vibes that it's benign please.
Instagram: irenesbattle
Twitter: irenesbattle
YouTube: https://www.youtube.com/channel/UCgy-NxAlz7zOGsAGTCS-bmg


Mason


Due to isolation, the family is unable to visit Mason. His surgery was cancelled due to CoronaVirus. Please pray that he continue to stay healthy & soon they will be able to visit Mason.
Message from mom-
It was so painful to leave this smiling face not knowing if it will be days or weeks before I see it again. My eyes hurt from the tears. When you see someone crying over a parade not happening or a concert cancelled or sporting event, remind them to be grateful that this isn't their reality.


Caylee


She Is doing well/ Due to COVID 19 they had to reschedule her Make a wish until next year. Pray she continues to stay Healthy.


Alexa - 17 years old- osteosarcoma/relaps


I met her a few weeks ago to help with some food gift cards. She wasn't feeling well at all and mom was very worried about her relapse. Please pray that they can get her in remission with minimal side effects.


Amanda - leukemia


In treatment since April 2018
Only girl of 3 siblings was in the hospital for quite sometime, had lumbar puncture & it was negative, Thank god. Currently she is also home in isolation until she has to have chemo. We also have helped them with gift cards; due to isolation, parents are unable to work and finances have been extremely difficult. Let's pray they continue to stay healthy & she is able to continue to get treatment. Also so very grateful for the help we were able to provide.


Shania - lymphoma


Doing pretty well; met with mom last week to help with food cards, some toys, & pjs for her & her brother who had a birthday. Mom was so beyond grateful for everything. She said things are tough but hard for her to ask for help, but so grateful that we reached out to help. Please continue to pray that Shania stays healthy.


Carness - lifelong battle with Sickel Cell


With sickle cell disease, an inherited group of disorders, red blood cells contort into a sickle shape. The cells die early, leaving a shortage of healthy red blood cells (sickle cell anemia), and can block blood flow causing pain (sickle cell crisis).
Chris met with family to help with food gift cards because the family is severely in a financial crisis due to her recently having a Bone Marrow Transplant. She is a single mom & has to stay home to take care of her as well as they have to stay in isolation due to CoronaVirus. Carness will also have to have a stem cell Boost.