WHEN: Friday, May 31st, 2019 at 12 noon
WHERE: Timberlin Golf Club
The Golf Outing is our primary fundraiser. Please consider using CWOP as your charity of choice so we can continue to help families. If you would like to participate, sponsor the golf outing, become a suppoter of CWOP, or be added to the prayer chain, please email me here.
We are now accepting donations via PayPal. Donations of any size are welcome and are tax deductible (CWOP is a 501C Non-profit).
Charlotte’s Web of Prayer was an idea God put in my heart while in Yale New Haven Hospital with my 3 year old daughter Charlotte. She had fallen and hurt her leg one day and had not walked on it for over a week. We did x-rays, MRI's, saw a specialist, but found no break. After a week she became really sick and lethargic. My wife and our pediatrician both decided she was not okay and brought her to the hospital for tests. When she arrived at the hospital, they did blood tests, and found out she was highly anemic. The initial diagnosis was leukemia. The next day we found out it was not leukemia, but the doctors believed it was another form of cancer, because of the low blood levels and pain in her legs. The next day they found no tumors, but discovered blood clots in her lungs. After some more tests, they discovered blood clots had moved to her brain, causing her to have a stroke. We later found out she has a Rare Blood Disorder call Hyperhomocystamenia. The disorder is inherited from the parents, and causes the body to produce clots at a much higher level than normal. Somehow a clot traveled to her head causing the stroke. When she fell down it was not because she hurt her leg, but because she had the stroke.
The first couple of days in the hospital were really hard on Charlotte and all of us. She had bone marrow tests, CT Scans, MRI’s, along with blood being drawn every 4 hours. We had not seen her smile for over 2 days when a representative from Child Life came to visit. They are in the hospital, and give children toys, movies, books… all donated to them. They gave her a Sponge Bob movie and pillow, and there was the first smile from Charlotte in over 60 hours. My wife Susan and I immediately agreed we wanted to be able to return the favor, and give something to bring even a little joy to another sick child. As James, a 12 year old boy who is going through his 2nd round of chemo to fight leukemia said, "There is not a lot of Joy in here (Pediatric ICU’s)".
Throughout our time in the hospital Charlotte had people praying for her all over the country. People all over the Northeast, Oregon, Washington, California, Florida, Texas, North and South Carolina, Michigan, Ohio…. were lifting Charlotte up in prayer. Non-denominational Christians, Catholics, Jews, Muslims, Protestants, and even friends at one time that claimed to be Atheists were reaching out to us, to let us know they are praying for Charlotte. Sue and I are blessed to have many Godly people in our lives that support and pray for us always. The outpouring of support, not only from our close friends, but people we barely know or did not know at all was over whelming. Charlotte had people in over 10 different prayer chains, and many individuals, totaling more than 500+ praying for her. As more and more people prayed for her, her health and spirit were continued to improve. I could not get over a sense of guilt when I looked at my sick neighbors in the hospital, and wondered if they had people praying for them. The reality is there are sick kids in every hospital in the country with conditions from leukemia, other forms of cancer, blood disorders, respiratory conditions, been in car accidents… that are in desperate need of prayer. Many of them are not lucky enough to have so many people praying for them correctly in the name of Jesus as we do. The Lord put on my heart this idea for a mission field. We could set up a massive prayer network through a web site, charlotteswebofprayer.org. The idea is to visit our local Pediatric Intensive Care Unit (PICU), offer these sick children a gift. I would then explain to them that are doing this because when my daughter was sick in the hospital, someone gave her a gift that really lifted her spirit. We would offer to pray for them, and ask if it is okay to post them on charlotteswebofprayer.org. We would update the sight daily/weekly with children to pray for, with specific prayer requests. People can visit the site pray for sick kids and get updates on children already on the site. Many of these children are in urgent need of prayer. Also, when you start your day praying for kids suffering in a hospital with a sorts of problems, the morning commute, your job, and money don’t seem so bad. If you are reading this then Charlotte’s Web has been hatched. Please contact me by email if you would like to get on the prayer network, or have a prayer request that we can post.
The Golf Outing is our primary fundraiser. Please consider using CWOP as your charity of choice so we can continue to help families. If you would like to participate, sponsor the golf outing, become a suppoter of CWOP, or be added to the prayer chain, please email me here. More information to come.
We are now accepting donations via PayPal. Donations of any size are welcome and are tax deductible (CWOP is a 501C Non-profit).
2-Aug 2016: Baby C has Stage 4 Neuroblastoma, and has tumors in her tummy. Doctors are encouraged because the tumors are shrinking. Please pray that they can get rid of the tumors through treatment, and that her condition continues to improve. Pray that her side effects are minimal from the treatment, and that the cancer is out of her body soon.
Lisa, Giovanni's mother, asked for us to pray for him. He has some form of seizure disorder that has something to do with his chromosomes. Will update more information as I learn more about him. We can pray that the doctors and nurses correctly diagnose Giovanni, and that it is something treatable. Pray that the seizures subside and that him body is strong enough to fight off whatever is causing the problems. Also pray for emotional strength for Lisa and her fiance as they go through this.
Mikey was born missing 83% of his Myto DNA. Melissa Mikey's mom, "We had 5 hours of happiness with our little boy then he was rushed to the ICU for blood transfusions." He was send home from hospital, but at 3 weeks he would sleep 22 hours a day, and wouldn't eat or gain weight. Melissa knew something wasn't right and she took him to Yale. The nurse took him from her without saying anything, and brought him to the PICU. His hemoglobin level was 2.5, and he could have died. After being diagnosed with Diamond Blackfan Anemia, then bone marrow failure syndrome, Mikey's bone marrow was shutting down, getting infections, kidney problems....
Finally test results from Canada correctly diagnosed Mikey with Pearson Syndrome. That when they found out he is missing 83% of his mitochondria DNA. There is no cure!! Melissa said her old surgeon said she should "take him home and make him comfortable b/c he is not going to live long". Melissa refused and begged to have a feeding tube put in Mikey. Once Mikey was strong enough, they had the risky surgery, and through a lot of prayer, the surgery went well.
Owen Dennis was born over the weekend at around 24 weeks of Amanda's pregnancy. They performed an emergency c-section. Owen was born just under 1 pound and 10 inches long. Please lift Owen up in prayer over the next critical 24-48 hours. Also pray for Amanda (mom) as she recovers from her surgery. Also pray for Kevin, it has been and will continue to be a trying time for him as he stays with his wife and son.
Thanks in advance to all you prayer warriors out there who read this and received the email. I will keep you updated as I find out more.
The prayer is that his kidneys begin to function normally. Kevin and Amanda are doing ok though this is a roller coaster ride for them. Kevin said as long as the good days out number the bad days they are ok. Let's continue to pray that the good days out number the bad days!
Charlotte suffered a stroke the week before her 3rd birthday. Fell to the ground and was inconsolable. After fall stopped walking on her left leg. Sue and I initially thought she broke her leg b/c she was so upset. After finding nothing on X-ray, MRI, specialist(7-10 days) Char became lethargic and sick. She was waking up kicking her good legs clearly in pain. Sue took Charlotte to the emergency room at Yale NH Hospital. She can in highly anemic with Blood Level of 3.6 (14 is normal for a 3 yr old). The initial diagnosis was Leukemia, then Hemoblastoma(another form of cancer). Around day 4 in the hospital finally after discovering blood clots in her lungs and brain. We found out the clots in her brain caused her to have a severe stroke, and that's why she was so shaken when she fell. The brain damage caused her leg not to perform properly.
My name is Justine and my daughter Caylee is 16 months old an was diagnosed with periventricular leukomalacia at 2 days old after suffering from a stroke in utero. She has been recently diagnosed with cerebral palsy, cortical visual impairment, tracheomalacia and has had 2 failed surgeries to stop a pneumonia that will not go away. She can not walk, talk or see. She has also had pneumonia 6 times, bronchitis 9 times, the swine flu and suffers from a seizure disorder. She has spent 10 months of her life at Yale. She is getting ready to have her 3rd and most serious surgery on May 10th.
1-Nov 2010: Dylan was diagnosed with Leukemia, and has been going through chemotherapy treatments for a long time. He has suffered through many infections, 106 degree fevers... In April, just 2 treatments before his chemotherapy was to be completed, they found out he had relapsed. Needless to say, the family was really disappointed. Since the relapse, he has been receiving a much higher dose of chemo, and he will soon have to go through the heaviest treatments of chemo. By all accounts, Dylan is a great kid with an amazing attitude. The chemo sometimes can take its toll on the body.
Dylan has to be rushed to the hospital with a high fever and low blood counts. He needed several transfusions and he is going to have to stay in the hospital for a while, until he is healthy enough to continue chemo treatments. His mother was disappointed that he could not go trick or treating.
Gracie is a smart, adorable 3 year old girl with a rare form of kidney cancer. She has already had one kidney removed. The doctors just found another tumor in her "good" kidney that has been growing during her chemotherapy. I don't have any more information about her or the disease, or a picture of her. As a distant friend of the family, I wish there was more I could do to help them. PLEASE pray for her, I know from first hand experience that prayer works!
09-Sep 2014: I do not know exactly the details, but Hector recently relapsed with his leukemia, and is going through hard times. His mother Rosa is also having a hard time with everything. Please pray that Hctor's condition improves right now, and that his blood counts go up, and any fever goes down. Also pray for Rosa, who is also going through a lot. Pray a blessing on Hector and his family.
18-Apr 2011: We met first Dillon's mother in the treatment room today. She heard us talking to Isabelle's mom. Dillon was there receiving treatment. Dillon was just diagnosed last month with Hodgkin's Lymphoma. Dillon was having a hard time breathing. He was not feeling well, and they thought maybe he had mono. They did tests last month, and discovered he had masses in his chest, actually pushing back him lungs. Dillon is doing his 2nd cycle of chemo, and has 4 total to do. He will most likely have to do radiation as well.
Aiden was born without half of his heart. He, like Charlotte, had a stroke. The stroke affected some of his organs, along with his eye sight. We met him at Yale last year. Aiden and his mom moved to Alabama to be near Aiden's grandparents, who help with his care.
10-Aug 2009: James is 12 yrs old. He has been receiving chemo for his Leukemia. He was not responding well to transfusions and his white blood cell could was to low.
6-Sept 2013: She is twelve and is in the hospital. She suddenly had two seizures yesterday! The parents already lost a very young child previously. I do not know how. But they are wanting to hold on to trusting the Lord for Jenna to be healed. Please pray that the Seizures go away, and that the doctors can figure out what caused the seizures. Also pray the seizures did not damage her brain or any part of her body. Also pray for peace for the family and they are concerned for their daughter.
Helps children cope with adjustments of being in hospital by providing a variety of play experiences. Art and recreational activities are offered in the playroom, and is a great distraction for children to just be children. Child Life gave Charlotte a gift that made her smile for first time in 60 hours. Charlotte loved going to the playroom and using the toys and games, and some of her early rehab was done with the limited number of toys there.
Provides toys to pediatric patients at Yale NH Hospital. Children can go to the toy closet and pick out a toy. Charlotte was able to go to the toy closet after going through a Bone Mallow Test. Kids usually get to go after a trying day (Chemo, Surgery, Tests…) to help lift their spirits.
Helps to support children with cancer and their families with emotional and medical needs. The Tommy Fund offers a wide range of assistance to the families. They help parents out with all sorts of Bills (Mortgage, Car, Parking, Food…). They also support Research for Pediatric Oncology. The fund is supported through donations and through events like the Fall Family, Wipe Out Walk-a-Thon, and a golf tournament.
Providing clothing, essential furniture and household goods, free of charge, to low-income individuals and families in need. Handed out clothing to over 4,000 individuals last year. Except donations of clothing as well as furniture. Are part of events like CityFest, the WOW Giveaway, and a back to school rally to purchase uniforms for children going to school that cannot afford to buy one themselves.
Please write your financial gift payable to "Charlotte's Web of Prayer" and mail it to:
771 Allen Avenue
Cheshire, CT 06410
or by PayPal